Dr Nickel
Interview

MOA
Animation

The median age of respondents at diagnosis was 45 - 54 years

67% of respondents said diagnosis took two years or longer with almost 10% waiting up to ten years for a diagnosis of PBS/IC
31% of respondents said that nobody knew what was wrong with them after experiencing PBS/IC symptoms and nearly a quarter said their GP just thought that they had severe cystitis
The most common method of diagnosis was an invasive procedure, 69% and 28% of respondents underwent cytoscopy and a biopsy respectively. These figures include patients who endured both procedures
62% of respondents were diagnosed with PBS/IC on the NHS
90% of respondents were diagnosed in hospital by a urologist (70%) or uro-gynaecologist (20%). 6% of respondents were diagnosed by GP or GP with a specialist interest
35% of respondents sought private medical help to achieve their PBS/IC diagnosis. Of these, over a third were forced into private care as the NHS did not recognise their condition